LAS VEGAS – The Las Vegas community is invited to join friends, parents, children and those affected directly by bleeding disorders during the Nevada Chapter of the National Hemophilia Foundation’s UNITE for Bleeding Disorders Walk and 5K on September 15, 2018, at Floyd Lamb Park at Tule Springs.
As Nevada’s only organization providing emergency financial assistance, youth programs, and advocacy for the bleeding disorders community, the Unite for Bleeding Disorders Walk is an extremely important fundraising event. In 2017, NHF NV was able to provide education and support to more than 700 households affected by bleeding disorders in Nevada – including $27,000 in emergency financial assistance, offer more than 20 education events, and advocate for affordable care at the federal and state level, all of which were funded in part by Walk donations.
Las Vegas Unite for Bleeding Disorders Walk/5K
Saturday, September 15, 2018
Floyd Lamb Park at Tule Springs
9200 Tule Springs Road, Las Vegas, Nevada, 89131
Register now for this event at http://bit.ly/LVUniteWalk
Registration/check-in – 7 a.m
Walk and 5K – 8 a.m.
All funds raised through the Unite for Bleeding Disorders Walk stay in Nevada, with the majority of proceeds used to fund youth development programs including sending children with bleeding disorders — and their siblings — to Camp Independent Firefly, a medically supervised summer camp. Children, aged 7 to 17, pay nothing to attend camp and are able to interact with campers that have been affected by bleeding disorders. At camp, these children are able to gain independence and knowledge about how to live with their life-long condition.
“As the only nonprofit organization supporting Nevadans with bleeding disorders, it’s vitally important we can continue to provide the resources, education and support that our community relies upon,” said Betsy VanDeusen, chapter executive director, Nevada Chapter of the National Hemophilia Foundation. “As our largest fundraiser, the Unite for Bleeding Disorders Walk will ensure our services and outreach to clients, and the hundreds of people who are undiagnosed, continues.”
Attendees will enjoy a light pre-walk breakfast, music, activities for children and team t-shirt contest. Admission to Floyd Lamb Park is free for all walk participants.
Inherited Bleeding Disorder Facts:
- Von Willebrand disease is the world’s most common inherited bleeding disorder affecting up to 3.2 million Americans
- Hemophilia is most often passed from mother to son, but girls can also be affected
- As many as 1% of women in the United States may have a bleeding disorder and many are unaware of their condition
- Approximately 1/3 of women carrying the hemophilia gene experience bleeding symptoms
- 1 in 10 women with heavy menstrual periods may have a bleeding disorder
- Bleeding disorder symptoms in women can include heavy menstrual cycles, frequent nose bleeds, easy bruising, bleeding after surgery, told you are “low in iron” or anemic.
- Women with undiagnosed bleeding disorders face lengthened hospital stays after routine procedures, increased medical bills, complications with pregnancy and childbirth, and low quality of life due to fatigue and pain
Take the self survey at betteryouknow.org to see if you or a loved one could have a bleeding disorder.
About the Nevada Chapter of the National Hemophilia Foundation
The mission of the Nevada Chapter of the National Hemophilia Foundation is to improve the quality of care and quality of life for people with hemophilia, von Willebrand Disease and other inherited bleeding disorders. Founded in 1990 as the nonprofit Hemophilia Foundation of Nevada, the chapter merged with the National Hemophilia Foundation in 2011. It is the only educational, advocacy and support organization working on behalf of Nevada’s inherited bleeding disorder community. Services provided by the chapter include emergency financial assistance, sponsorship of seminars on issues important to the bleeding disorders community, dissemination of information as well as awareness of the complications of the disease to the general public, media and healthcare providers. In addition, the chapter publishes a newsletter to keep members better informed. Additional information can be found at www.hfnv.org or by calling (702) 564-4368.