LAS VEGAS – Walkers and runners in Reno and Las Vegas in September raised a record amount of donations for the Nevada Chapter of the National Hemophilia Foundation, surpassing last year’s record amount.
More than $61,000 was raised through the efforts of walk participants and supporters for Nevada’s only nonprofit organization advocating on behalf of the inherited bleeding disorders community.
The majority of the funds will allow the chapter to continue efforts to send 150 kids with inherited bleeding disorders, along with their siblings, to a special medically supervised summer camp at no cost to them.
There is no cure for hemophilia or von Willebrand Disease, meaning those affected rely on life saving medicine, called factor, to prevent bleeds. While extremely effective, factor medication is expensive. The Chapter will also use walk funds to help clients without medical insurance, or without the financial ability, to get their needed medication.
“The support we continue to receive from across Nevada is absolutely humbling,” said Kelli Walters, Executive Director of the Nevada Chapter of the National Hemophilia Foundation. “We cannot continue our efforts to improve the lives of those with inherited bleeding disorders without the community’s involvement and help!”
The Reno Hemophilia Walk & 5K event was held September 12, 2015 at Virginia Lake Park. The Las Vegas Hemophilia Walk & 5K was held September 26, 2015 at Floyd Lamb Park at Tule Springs. Both walks were sponsored by the Hemophilia Treatment Center of Nevada which provides diagnosis, treatment, medical referrals and comprehensive clinics to all people with inherited bleeding and clotting disorders in Las Vegas, Reno and throughout the state. It is the only federally recognized hemophilia treatment center (HTC) in the state.
About Nevada Chapter of the National Hemophilia Foundation
NHF Nevada was founded in 1990 and helps meet the vast education and support needs of the bleeding disorders community in Nevada. There are approximately 20,000 people living with Hemophilia in the United States. It is an expensive disease where life-long management of Hemophilia places a large financial burden on individuals and families. Additionally, NHF Nevada provides services to those affected by von Willebrand disease, and clotting disorders such as Thrombophilia, which causes the blood to clot excessively. Every dollar raised at this event will help the bleeding disorder community in Nevada.